Our baby girl is the most beautiful baby girl ever… not because she is our daughter but she is. When she was born she had the biggest eyes and they would tend to turn colors between blue and then sometimes like a grey. We were hoping they stayed that color because it would be amazing.
When I would change her diaper I would always tend to look at her eyes because I was amazed by how beautiful they were. One specific day, when she was only 3 months old on December 2, 2015 , I saw something different. Her left eye color had a cloudy look to it. I was concerned and I told my husband to come and see it for himself because I noticed it in the evening. We found it odd, so we said let’s wait until morning to see if it has changed.
The next morning December 3, 2015 came and we checked her eyes and it was still the same. We decided to not wait and take her to the pediatrician. Thankfully there were walk-in appointments and we were able to see her pediatrician right away. When she saw her she was concerned and said to take her to Lurie Children Hospital for evaluation.
Imagine our ordeal, being told to take our 3 month old baby girl to the ER to see what was going on. We went and they started to check her eyes and then more doctors came in and there came the worst news for any parent to hear. The doctor said “Mr and Mrs. Perez your daughter has congenital glaucoma and her eye pressure on her left eye is at 40, normal eye pressure is in the range of 11 and 12″.
Our hearts dropped and now worry started to come upon us even more now. What do we do now? What’s next? Well the doctors said we need to do emergency surgery right now to alleviate the pressure that is building in her eye and start her on eye drops.
We were in the hospital practically all day and night and she had her 1st surgery of 6 eye surgeries performed. Now the doctor visits started, first every week, then every two weeks and then every 3 months and now every 6 months.
Now present day, in 2021, my daughter has an ahmed glaucoma valve that regulates the pressure in her right eye and has continuous glaucoma specialist appointments. Other than that she is a healthy and very daring little 5 year old girl.
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